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The G-Tube Life: Playtime Break
C and his sweet cousin had so much fun playing together yesterday. When C had to take a break for a feeding, she stayed by his side and watched some, “Doc McStuffins,” with him. Love!… Continue Reading
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The G-Tube Life: Dinner and a Movie
This is what dinner and a movie looks like for our little tubie!… Continue Reading
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“Tummy Hurt.”
I think this may have all been a little easier before C was able to articulate things. Last night I noticed that there was fluid leaking around his g-tube button, which meant that I needed to add 1-2...
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C’s Big Accomplishment!
Our next big push, after seeing the Feeding Clinic Psychologist on Tuesday, is to get C to sit at the table to eat. The last goal was to get him sitting to eat in general, and we managed to get him...
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Words that shouldn’t be in my 2-year-old’s vocabulary: medicine, doctors, and...
Tuesday marked another day spent at Children’s Hospital of Wisconsin. We started the morning in ENT, where we discussed the neck x-ray that had revealed enlarged tonsils and adenoids. The second...
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We Eat at the Table!
It’s been awesome to see C’s progress over the past week. He now knows that we only eat at the table, and he sits there for his meals (even if it’s only for a minute or two). We have our meals at the...
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The G-Tube Life: The Naked Phase?
We may have reached the phase of toddlerhood in which he likes to be naked. He just stripped off his pajamas (we’re having a pajama day) and said, “Nudey!” My silly little tubie. … Continue Reading
View ArticleAging Out of Birth to Three
Decisions, decisions. When a child gets close to aging out of the Birth to Three program, there are three options. Schedule an evaluation for services with the public school system, seek private...
View ArticleThe Feeding Clinic, Sensory Processing Disorder, and the Blenderized Diet
Take C to the feeding clinic, they said. It’s the best place for him, they said. If he doesn’t sit at the table, don’t give him food at all, the feeding clinic said. He must not leave the table until...
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Our Decisions for C After Birth to Three
The last few months have been filled with SO MANY DECISIONS. Yes, sometimes I felt like life was screaming at me to make all of them. I was stressed about doing the right thing, making the right...
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(Kinda) Wordless Wednesday: We Ate at a Restaurant!
What’s the big deal, you say? It’s just a restaurant, you say? This is the first time we have ever taken the kids to a restaurant! Of course, we’ve dined at fast casual establishments like your...
View ArticleC’s Blended Diet is Changing His Life
I belong to a few Facebook groups for parents of tubies, kids with severe feeding challenges and blended diets. One mother posted a picture of her son’s new Blendtec blender with hope that a new...
View ArticleWhat I Don’t Say About Being a Special Needs Mom
“I don’t know how you do it.” I get those words a lot. I usually smile and reply, “You learn to deal with what you have to deal with.” That’s the truth, but there is a lot more to my truth that I don’t...
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Why this Mother’s Day was emotional for me
Kymberly Carlson Photography I found myself close to tears a few times yesterday. A few times those tears even spilled down my cheeks. Mother’s Day served as a reminder of how difficult this year of...
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A child who never eats and a child who eats all the time.
Baby Jo might eat us out of house and home, you guys. She wants to eat as soon as she wakes up in the morning. She wants a snack a couple of hours later. She’s hungry again at lunchtime. Then she...
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Checking In: C’s Health
The last detailed update that I gave you all about C’s health was when he had an EEG done to look further into the brain activity that was picked up during his sleep study. I didn’t update you on the...
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C Ate Lunch with Baby Jo!
In many households, this would be a normal lunchtime picture. Brother and sister eating at the table together, each of them feeding themselves their food. In my home, this moment was enough to bring...
View Article(Kinda) Wordless Wednesday: Vacation Prep Starts Early! #tubie #gtube
We’re 10 months into this g-tube life, and I’m getting smarter about everything. I’ve started preparing now for our vacation that starts on Sunday! So far I’ve made 8 of the 18 feeds that C will need...
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Wondering what the future holds for my special needs child
I know that I spend too much time thinking about the future. I just can’t help but wonder what the future holds for my special needs son. When C has difficulty listening to directions, I wonder how...
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(Kinda) Wordless Wednesday: The Multitasking Tubie
Here’s my little tubie boy taking care of a couple things at once: listening therapy and a tube feeding! Because he simply wouldn’t be a mini-me without multitasking. The post (Kinda) Wordless...
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